Supporting All of Us participants to join and stay engaged in precision medicine
Official title: Partnering for Precision Medicine: A Collaborative Services Center for the All of Us Program
Funded at National Opinion Research Center · NIH-11467593 · Data updated 2026-11-12
This project builds tools and support to help people (including children) join the All of Us Research Program and stay involved so their health information can improve personalized care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Opinion Research Center NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | January 1, 2024 |
| Project end | December 31, 2026 |
| Funding year | 2026 |
| Award (this year) | $31,000,000 |
| NIH project number | 3OT2OD036464-01S5 |
| Project ID | NIH-11467593 on NIH RePORTER |
Who could benefit from this research
✓Could help
People interested in joining the All of Us Research Program—including children and families at participating sites—are the ideal candidates to benefit from these services.
✕Less likely to help
People who do not want to share health data, live outside participating areas, or do not meet All of Us eligibility criteria are unlikely to benefit from participation in this project.
What this research studies
From the participant's perspective, the project creates a Participant and Partner Services Center that helps people enroll, stay engaged, and take part in additional studies. The center will build technology systems and standardized processes for collecting different kinds of health data and for returning information to participants. NORC will work with NIH and other partners to expand enrollment (including pediatric participants), support new data-collection methods, and run ancillary study services. The goal is to make participation smoother and to maintain long-term engagement so participants' data can be used safely by researchers.
Why it matters
Potential benefit: If successful, this could make it easier for you and your family to join All of Us, share health data securely, and receive useful information back from the program.
How similar studies have gone: All of Us has previously enrolled large numbers of participants and this effort builds on established engagement and data-collection approaches rather than testing a new medical treatment.
Where this research is happening
-
National Opinion Research Center
Chicago, United States Active
Researchers
- Principal investigator: Smith, Stephen — National Opinion Research Center
- Study coordinator: Smith, Stephen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.