Support center to help All of Us participants join and stay involved, including children
Partnering for Precision Medicine: A Collaborative Services Center for the All of Us Program
This project builds tools and services to help people (including children and their families) join, share health data, and stay engaged with the All of Us research program.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Opinion Research Center NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project ID | NIH-11393908 on NIH RePORTER |
What this research studies
If I join All of Us, this center will create technology and support to help me enroll, provide different types of data, and stay connected over time. The center will work with NIH and other partners to recruit new participants, maintain contact with those already enrolled, and expand data collection methods, including pediatric approaches. They will also support related ancillary studies and help return information back to participants in a standardized way.
Who could benefit from this research
Good fit: People across the U.S., including children with parental consent and their families, who want to join the All of Us Research Program and share health and lifestyle information are ideal candidates.
Not a fit: This program does not provide direct medical treatment or guaranteed individual clinical benefits, so people seeking immediate clinical care would not benefit from joining for that purpose.
Why it matters
Potential benefit: If successful, this could make it easier for participants and families to join, contribute useful data, and receive understandable information back about their health and the research.
How similar studies have performed: The All of Us program has previously enrolled large numbers of participants and piloted participant services, and this project builds on those existing engagement and data-collection efforts.
Where this research is happening
Chicago, United States
- National Opinion Research Center — Chicago, United States (Active)
Researchers
- Principal investigator: Smith, Stephen — National Opinion Research Center
- Study coordinator: Smith, Stephen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.