Support center to help All of Us participants, including children, join and stay involved
Official title: Partnering for Precision Medicine: A Collaborative Services Center for the All of Us Program
Funded at National Opinion Research Center · NIH-11411746 · Data updated 2026-11-12
This project is building technology and services to help All of Us participants — including children and families — enroll, stay engaged, and take part in new research activities.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Opinion Research Center NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | January 1, 2024 |
| Project end | September 14, 2026 |
| Funding year | 2025 |
| Award (this year) | $1,332,000 |
| NIH project number | 3OT2OD036464-01S4 |
| Project ID | NIH-11411746 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals and caregivers interested in joining the All of Us Research Program — including parents of children in the 0–11 age range — are the ideal participants for these services.
✕Less likely to help
People not enrolled in All of Us or those seeking immediate clinical care rather than research participation are unlikely to receive direct benefits from this grant.
What this research studies
From a participant point of view, a new Participant and Partner Services Center will provide tools, systems, and operational support to make joining and staying in the All of Us program easier. NORC will work with NIH and other partners to enroll new participants, maintain engagement for existing participants, and expand participation options for pediatric populations. The center will develop and run technology for multimodal data collection, support ancillary study coordination, and help return information to participants. These services aim to standardize and streamline processes so participants across the country can more easily contribute data and samples to research.
Why it matters
Potential benefit: If successful, patients and families could have easier access to research opportunities, clearer return of results, and better support for participating in pediatric and other studies.
How similar studies have gone: Large cohort programs like All of Us have previously used centralized participant support and technology platforms successfully to improve enrollment and retention, so this builds on proven approaches.
Where this research is happening
-
National Opinion Research Center
Chicago, United States Active
Researchers
- Principal investigator: Smith, Stephen — National Opinion Research Center
- Study coordinator: Smith, Stephen
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.