Support and education for caregivers of people with Lewy Body Dementia
Official title: PERSEVERE in Lewy Body Dementia: A Randomized, Controlled Trial of Peer Mentor Support and Caregiver Education
Funded at Rush University Medical Center · NIH-10898018 · Data updated 2026-11-12
This study is looking at how a support program and helpful resources can make life easier for caregivers of people with Lewy Body Dementia, so they feel more confident and better able to handle the challenges of caregiving.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Rush University Medical Center NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | August 15, 2023 |
| Project end | June 30, 2028 |
| Funding year | 2024 |
| Award (this year) | $703,277 |
| NIH project number | 5R01AG079128-02 |
| Project ID | NIH-10898018 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are family caregivers of individuals diagnosed with Lewy Body Dementia.
✕Less likely to help
Patients who are not caregivers or who do not have a diagnosis of Lewy Body Dementia may not receive any benefit from this research.
What this research studies
This research investigates the effectiveness of a peer mentor support program and educational resources for caregivers of individuals living with Lewy Body Dementia (LBD). The program aims to enhance caregivers' knowledge, skills, and confidence in managing the complexities of LBD, which can lead to better health outcomes for both caregivers and patients. By utilizing a randomized, controlled trial design, the study will measure the impact of these interventions on caregiver strain and the overall quality of life for persons living with LBD. Participants will receive tailored support to help them navigate the challenges associated with caregiving.
Why it matters
Potential benefit: If successful, this research could significantly reduce caregiver strain and improve the quality of life for both caregivers and individuals living with Lewy Body Dementia.
How similar studies have gone: Previous research has shown success with peer mentor support programs for caregivers in similar contexts, indicating a promising approach for this study.
Where this research is happening
-
Rush University Medical Center
Chicago, United States Active
Researchers
- Principal investigator: Fleisher, Jori Erin — Rush University Medical Center
- Study coordinator: Fleisher, Jori Erin
Related research
Other NIH-funded projects on the same topics.
-
PERSEVERE: Peer mentor support and caregiver education for Lewy body dementia
A caregiver-focused program using peer mentors and education to help families caring for Lewy body dementia and reduce caregiver strain.
-
Home-based brain stimulation to help cognition and movement in older adults at risk for dementia
A home-based brain stimulation treatment is being tested to help memory, thinking, and walking in older adults who are at higher risk for Alzheimer’s and related dementias.
-
Activities4Care: a digital assistive platform to boost well-being for people with dementia and their caregivers
A new digital platform will provide personalized, meaningful activities for people living with dementia to improve mood, behavior, and quality of life, with guidance for caregivers.
-
Family caregiver programs in nursing homes and dementia care outcomes
This grant studies how state essential caregiver programs during 2020-2021 affected the care and outcomes of nursing home residents with Alzheimer's disease and related dementias.
-
Matching care to need in dementia transitions: tailoring services for people with dementia and their caregivers
A dementia-focused project aims to tailor hospital-to-home or SNF care transitions to fit each patient and caregiver, improving safety and reducing readmissions.
-
Peer support program helping Black families caring for loved ones with dementia
A family caregiver support program led by peers helps Black families caring for older relatives with Alzheimer’s disease or related dementias, delivered virtually.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.