Stress-triggered RNA–protein clumps and their role in ALS and FTD

Investigating Dysregulation of Stress-related Ribonucleoprotein Granules and Functions of Associated RNA-binding Proteins in ALS/FTD

NIH-funded research Johns Hopkins University · NIH-11237597

Researchers are looking at how stress-related RNA–protein clumps and the proteins that bind RNA may damage nerve cells in people with ALS and frontotemporal dementia.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionJohns Hopkins University NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11237597 on NIH RePORTER

What this research studies

If I have ALS or FTD, this research looks into how cellular stress makes RNA and proteins form clumps inside nerve cells and how RNA-binding proteins contribute to that process. Scientists at Johns Hopkins will use biochemical tests, cell models, and animal models to see how these stress-related ribonucleoprotein granules form and disrupt protein and RNA balance. They will examine genetic links (for example C9ORF72) and manipulate specific RNA-binding proteins to identify steps that cause toxicity. The goal is to pinpoint molecular steps that could be targeted to prevent harmful clumps and protect neurons.

Who could benefit from this research

Good fit: People diagnosed with amyotrophic lateral sclerosis or frontotemporal dementia, especially those with known genetic links such as C9ORF72, would be most relevant to this work.

Not a fit: People without ALS or FTD, or with unrelated neurological conditions, are unlikely to benefit directly from this preclinical research, and those in very advanced stages may not see immediate benefit.

Why it matters

Potential benefit: Could identify molecular targets to stop or reduce harmful RNA–protein clumps, potentially leading to therapies that slow neuron loss in ALS/FTD.

How similar studies have performed: Previous research has linked RNA-binding proteins and stress granules to ALS/FTD, but turning those findings into effective treatments remains early and experimental.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Amyotrophic Lateral Sclerosis Motor Neuron Disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.