STELLA-FTD: Support for family caregivers of frontotemporal dementia
STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners
A new tech-supported program to help family caregivers of frontotemporal dementia manage difficult behaviors and reduce caregiver stress.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Oregon Health & Science University NIH-funded |
| Lab location | 1 site (Portland, United States) |
| Project ID | NIH-11130957 on NIH RePORTER |
What this research studies
If you care for a person with frontotemporal dementia (FTD), this project is testing STELLA-FTD, a program that combines technology, rehabilitative ideas, and nursing approaches to teach behavior-change skills. The program uses the ABC method—looking at a behavior, its triggers, and its consequences—to help you respond to problems like disinhibition, apathy, and agitation. Researchers will deliver the program to family care partners and measure whether it lowers caregiver burden and which parts of the ABC approach are most essential. The goal is to refine the program so it can be used more widely in communities.
Who could benefit from this research
Good fit: Ideal candidates are family members or unpaid care partners of people diagnosed with frontotemporal dementia who are dealing with behavior-related caregiving challenges.
Not a fit: People who do not care for someone with frontotemporal dementia, who have no behavior-related caregiving burden, or who cannot use the required technology may not benefit from this program.
Why it matters
Potential benefit: If successful, the program could lower caregiver stress and give practical tools for managing challenging FTD behaviors, improving day-to-day life for families.
How similar studies have performed: ABC-style behavior-change approaches have helped caregivers in other dementia studies, but this tech-supported program specifically for FTD is new and has not yet been proven.
Where this research is happening
Portland, United States
- Oregon Health & Science University — Portland, United States (Active)
Researchers
- Principal investigator: Lindauer, Allison — Oregon Health & Science University
- Study coordinator: Lindauer, Allison
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.