State Alzheimer's Support Center Data Hub
Data Core - The State Alzheimer's Research Support Center (StARS)
Builds a secure, shared data hub so states and researchers can learn which state programs help people with Alzheimer's disease and their caregivers.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-11189627 on NIH RePORTER |
What this research studies
This project will create a central, secure data warehouse that brings together state program and health records related to Alzheimer's disease and related dementias. The team will map state rules for home- and community-based dementia services, catalog the data contributed, and build privacy safeguards and governance so data can be linked safely. Researchers and state policymakers will be able to use these tools to study programs that aim to keep people at home longer or improve caregiver support. The Data Core will also provide technical help so states with limited computing resources can run rigorous analyses.
Who could benefit from this research
Good fit: People with Alzheimer's disease or related dementias and their caregivers whose care or service use appears in participating state records are the main groups who could be represented in the data and benefit indirectly.
Not a fit: People whose care is not recorded in participating state systems or who live outside participating states are less likely to see direct benefits from this work.
Why it matters
Potential benefit: Could help states identify and expand programs that let people with Alzheimer's stay at home longer and improve support for caregivers.
How similar studies have performed: Data-linkage and policy research centers have helped states study programs before, but applying a shared, multi-state data core specifically to Alzheimer's and related dementias is relatively new.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Thomas, Kali St. Marie — University of Minnesota
- Study coordinator: Thomas, Kali St. Marie
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.