Speeding up gene‑editing to target the C9ORF72 form of ALS

High-throughput optimization of gene editing systems for treating Amyotrophic lateral sclerosis

NIH-funded research Acrobat Genomics, INC. · NIH-11194384

This project builds faster, more precise gene‑editing tools aimed at removing the harmful C9ORF72 repeat mutation in adults with ALS.

Quick facts

Grant typeSbir 1 grant
Study typeNIH-funded research
Funding institutionAcrobat Genomics, INC. NIH-funded
Lab location1 site (Foster City, UNITED STATES)
Project IDNIH-11194384 on NIH RePORTER

What this research studies

The team will use high‑throughput lab tests to compare many gene‑editing approaches and identify the ones that best remove the toxic C9ORF72 repeat expansion. They will prioritize methods that can edit the disease mutation precisely, work on human‑relevant cells or samples, and reduce unwanted edits. Safety checks and measures to allow multiplexed targeting are part of the plan so therapies could be both effective and specific. Successful candidates would then move toward further preclinical development that could lead to clinical trials.

Who could benefit from this research

Good fit: Adults with ALS who have a confirmed C9ORF72 repeat expansion would be the most relevant candidates for therapies developed from this work.

Not a fit: People with ALS who do not carry the C9ORF72 repeat expansion, younger patients under typical adult age cutoffs, or those with very advanced respiratory failure are unlikely to benefit from this specific approach.

Why it matters

Potential benefit: If successful, this work could produce a durable gene‑editing approach that permanently reduces or removes the disease‑causing C9ORF72 mutation and slow or stop disease progression for affected patients.

How similar studies have performed: Related approaches like antisense oligonucleotides and early gene‑editing work have shown promise in models, but permanent, targeted editing of C9ORF72 in patients remains largely unproven.

Where this research is happening

Foster City, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.