Sickle cell clinical and data support center
Official title: Clinical Research and Data Informatics Core
Funded at Nemours Children's Hospital, Delaware · NIH-11179264 · Data updated 2026-11-12
Helps children and young adults with sickle cell disease join clinical studies and get better care by improving research support and how patient data is used.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Nemours Children's Hospital, Delaware NIH-funded |
| Lab location | 1 site (Wilmington, United States) |
| Project start | August 1, 2014 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $590,546 |
| NIH project number | 5P20GM109021-10 |
| Project ID | NIH-11179264 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children and young adults with sickle cell disease who receive care at NEMOURS or affiliated regional sites are the primary candidates to benefit or participate in studies supported by this core.
✕Less likely to help
People without sickle cell disease or those outside the regional care network are unlikely to benefit directly from this center's activities.
What this research studies
This center builds a central team to run sickle cell clinical projects and quality-improvement efforts, offering project management, regulatory help, and data analysis. It makes it easier for children and young adults to take part in trials by streamlining processes and supporting clinicians and research staff. The core mentors junior investigators and applies modern data methods to track outcomes and identify care gaps. By sharing tools and expertise, the center aims to bring more studies and better day-to-day care to local patients.
Why it matters
Potential benefit: Could increase access to trials and improve clinical care for people with sickle cell disease through better data-driven programs and coordinated research support.
How similar studies have gone: Other institutional clinical research cores and data platforms have successfully increased trial enrollment and improved care coordination, so this approach builds on established practices.
Where this research is happening
-
Nemours Children's Hospital, Delaware
Wilmington, United States Active
Researchers
- Principal investigator: Miller, Robin — Nemours Children's Hospital, Delaware
- Study coordinator: Miller, Robin
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.