NIH-funded research R01 grant

Shared decision tool to help veterans with dementia and caregivers choose ED care and discharge

Official title: A Shared Decision-Making Tool to Support Emergency Department (ED) Dispositions for Veterans with Dementia

Funded at Duke University · NIH-11349240 · Data updated 2026-11-12

This project builds a simple tool to help veterans living with dementia and their families make emergency department care and discharge decisions together.

More Dementia research and trials

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionDuke University
NIH-funded
Lab location1 site (Durham, United States)
Project startSeptember 30, 2021
Project endAugust 31, 2027
Funding year2025
Award (this year)$280,629
NIH project number3R01AG072364-02S1
Project IDNIH-11349240 on NIH RePORTER

Who could benefit from this research

Could help

Ideal participants are veterans living with Alzheimer’s disease or related dementias and their family or friend caregivers, especially those who have had recent emergency department visits or face ED care decisions.

Less likely to help

People without dementia, non-veterans, or individuals who never use emergency services are unlikely to benefit directly from this work.

What this research studies

You and your caregiver would be invited to join interviews and stakeholder panels to share what matters most about day-to-day life and care after an ED visit. The team will use those insights to design a decision-support tool and a clear way to count "home time" that reflects quality of life for people with dementia. They will test which definitions of "home time" best match outcomes that matter to you, and look for risk factors that, if changed, might increase safe time at home. A caregiver-specific version of the tool will also be developed to reflect caregiver priorities.

Why it matters

Potential benefit: If successful, this could help veterans with dementia spend more safe time at home and make ED decisions that match their and their caregivers' wishes.

How similar studies have gone: Shared decision tools exist in other medical areas, but creating and validating a dementia-focused "home time" quality-of-life measure is a relatively new and untested approach.

Where this research is happening

  • Duke University
    Durham, United States
    Active

Researchers

  • Principal investigator: Van Houtven, Courtney Harold — Duke University
  • Study coordinator: Van Houtven, Courtney Harold

Related research

Other NIH-funded projects on the same topics.

  • Antisocial behaviors in frontotemporal dementia: aggression versus rule‑breaking

    This project looks at different kinds of antisocial behaviors—like aggression or rule‑breaking—in people with behavioral variant frontotemporal dementia (bvFTD) and how those behaviors relate to brain changes.

    NIH research Vanderbilt University Medical Center · Nashville, United States · NIH-11306098

  • Creating a tool to help older adults with dementia make care decisions

    This study is all about helping older adults with Alzheimer's and related conditions make better choices when moving from home care to long-term care facilities by talking to them and their caregivers to understand what they want and need.

    NIH research University of Washington · Seattle, United States · NIH-11225508

  • Decision tool to help veterans with dementia and caregivers in the emergency room

    Creates a short conversation aid to help veterans living with dementia, their caregivers, and ER clinicians decide whether to admit a patient or go home.

    NIH research Durham VA Medical Center · Durham, United States · NIH-11220434

  • Understanding antisocial behavior in frontotemporal dementia

    This study is looking at the challenging behaviors, like aggression and breaking rules, that can happen in people with behavioral variant frontotemporal dementia (bvFTD), and it aims to better understand how these behaviors are connected to changes in the brain.

    NIH research Vanderbilt University Medical Center · Nashville, United States · NIH-11132837

  • A tool to help veterans with dementia make decisions about emergency care.

    This study is creating a helpful tool for veterans aged 65 and older with dementia to make better decisions during emergency room visits, so they, their caregivers, and doctors can talk about whether it's best to stay in the hospital or go home, all while keeping their needs and wishes in mind.

    NIH research Durham VA Medical Center · Durham, United States · NIH-10974469

  • Creating a care decision-making program for African American families dealing with dementia

    This study is creating a special program to help African American families, especially adult daughters caring for parents with Alzheimer's, make better decisions about care, so they can feel more supported and improve their loved ones' quality of life.

    NIH research Emory University · Atlanta, United States · NIH-10897947

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.