Screening for developmental delays in children with sickle cell disease

(SCANS) Sickle Cell Anemia Neurodevelopmental Screening - Mentoring and Research in Patient Oriented Research

NIH-funded research Washington University · NIH-10685968

This study is looking at how sickle cell disease can affect the development and thinking skills of young children, so we can help kids aged 0-11 get the support they need early on to do better in school.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionWashington University NIH-funded
Lab location1 site (Saint Louis, United States)
Project IDNIH-10685968 on NIH RePORTER

What this research studies

This research focuses on identifying developmental delays and cognitive impairments in young children with sickle cell disease (SCD), a condition often overlooked in routine screenings. The project aims to implement developmental screening processes to ensure that children receive necessary interventions early in life, which can significantly improve their educational outcomes. A multidisciplinary team, including hematologists and neuropsychologists, will work together to assess and address these developmental needs. By targeting children aged 0-11, the research seeks to provide evidence-based resources to support their growth and academic success.

Who could benefit from this research

Good fit: Ideal candidates for this research are children aged 0-11 diagnosed with sickle cell disease.

Not a fit: Patients outside the age range of 0-11 or those without a diagnosis of sickle cell disease may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved developmental outcomes and academic success for children with sickle cell disease.

How similar studies have performed: Previous research has shown success in implementing developmental screenings in similar pediatric populations, indicating a promising approach.

Where this research is happening

Saint Louis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Hb SS diseaseHbSS diseaseHemoglobin S DiseaseHemoglobin sickle cell diseaseHemoglobin sickle cell disorder
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.