Restoring function in a gene related to Lowe Syndrome and Dent-2 disease

Restoring Ocrl1 function in Lowe Syndrome and Dent-2 disease

NIH-funded research Purdue University · NIH-10898686

This study is looking for new ways to help kids with Lowe Syndrome and Dent-2 disease by testing some existing medications to see if they can make a faulty protein work better, with the hope of easing their symptoms and improving their lives.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionPurdue University NIH-funded
Lab location1 site (West Lafayette, United States)
Project IDNIH-10898686 on NIH RePORTER

What this research studies

This research focuses on Lowe Syndrome and Dent-2 disease, both caused by mutations in the OCRL1 gene. The project aims to restore the function of the mutated OCRL1 protein using allosteric activators, which are drugs that can stabilize the protein's active form. By screening various compounds, including some that are already FDA-approved, the researchers hope to identify effective treatments that can alleviate the symptoms associated with these conditions. The ultimate goal is to improve the quality of life for affected children and potentially extend their lifespan.

Who could benefit from this research

Good fit: Ideal candidates for this research are children diagnosed with Lowe Syndrome or Dent-2 disease, particularly those with specific mutations in the OCRL1 gene.

Not a fit: Patients with other genetic disorders unrelated to OCRL1 mutations may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new treatments that significantly improve the health and longevity of children with Lowe Syndrome and Dent-2 disease.

How similar studies have performed: Previous research has shown promise in using allosteric activators for similar genetic conditions, indicating potential for success in this approach.

Where this research is happening

West Lafayette, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.