Remote follow-up and digital monitoring for people with Parkinson's disease
Assessing Tele-Health Outcomes in Multiyear Extensions of Parkinson's Disease Trials-2 (AT-HOME PD-2)
This project uses video visits, smartphone tasks, and online surveys to track symptoms over time in people with Parkinson's disease who were in earlier clinical trials.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project ID | NIH-11326824 on NIH RePORTER |
What this research studies
If you took part in the STEADY-PD III or SURE-PD3 trials, researchers will continue following you from home using video visits, smartphone-based assessments, and online surveys. The team is working with about 225 participants and links remote assessments to prior clinical data, whole genome sequencing, and past plasma samples. This approach aims to capture more frequent, real-world symptom information as participants move into mid-stage Parkinson's. Most contacts are remote, reducing travel and allowing people across a wide area to join.
Who could benefit from this research
Good fit: Ideal candidates are people with Parkinson's disease who previously participated in the STEADY-PD III or SURE-PD3 trials or those with mid-stage Parkinson's who can complete remote video and smartphone assessments.
Not a fit: People without Parkinson's, those unable to use video or smartphone tools, or those outside the eligible participant groups may not receive direct benefit from this project.
Why it matters
Potential benefit: If successful, this could make it easier to monitor Parkinson's progression from home and spot changes sooner without frequent clinic visits.
How similar studies have performed: Remote and digital monitoring approaches in Parkinson's have shown promise in smaller or shorter projects, but this longer-term, decentralized follow-up is relatively new.
Where this research is happening
Rochester, United States
- University of Rochester — Rochester, United States (Active)
Researchers
- Principal investigator: Schneider, Ruth — University of Rochester
- Study coordinator: Schneider, Ruth
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.