Quality of life for people on home dialysis and their family caregivers
Official title: Longitudinal Study of Quality of Everyday Life Experience among Home Dialysis Patients and Their Family Caregivers
Funded at Emory University · NIH-11415021 · Data updated 2026-11-12
This grant studies how living with home dialysis affects daily life and the well-being of patients and their family caregivers.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | September 15, 2025 |
| Project end | July 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $775,578 |
| NIH project number | 5R01DK142681-02 |
| Project ID | NIH-11415021 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults with end-stage renal disease using home dialysis (peritoneal dialysis or home hemodialysis) and their family caregivers.
✕Less likely to help
Patients without access to home dialysis or who do not engage in home-based care may not directly benefit.
What this research studies
If implemented, the project will follow people using home dialysis and their caregivers to understand day-to-day challenges, burdens, and coping strategies. It will use cross-sectional surveys and data from patients and families to capture real-life experiences over time. The goal is to identify factors that influence daily life quality and to inform policies and supports that make home dialysis easier and more sustainable for families.
Why it matters
Potential benefit: Findings could lead to better support programs and policies that improve daily life for home dialysis patients and their caregivers.
How similar studies have gone: Prior work has explored patient experiences with dialysis, but this study aims for deeper, longitudinal insights into home dialysis and caregiver impact.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Song, Mi-Kyung — Emory University
- Study coordinator: Song, Mi-Kyung
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.