Protecting patient privacy while analyzing genetic data
Official title: Privacy Preservation in Transcriptomic Data Analysis
Funded at New York Genome Center · NIH-11174987 · Data updated 2026-11-12
This study is working on new ways for researchers to look at genetic information while keeping your personal details safe and private, so they can better understand health conditions without risking your confidentiality.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | New York Genome Center NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project start | September 23, 2024 |
| Project end | August 31, 2025 |
| Funding year | 2024 |
| Award (this year) | $855,711 |
| NIH project number | 1R56HG013319-01A1 |
| Project ID | NIH-11174987 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals who have participated in genetic studies or have genetic data that could contribute to understanding disease mechanisms.
✕Less likely to help
Patients who do not have genetic data or are not involved in genetic research may not benefit from this research.
What this research studies
This research focuses on developing advanced tools that allow researchers to analyze genetic and transcriptomic data without compromising patient privacy. By utilizing cryptographic methods, the project aims to enable computations on encrypted data, ensuring that sensitive information remains secure. The tools will facilitate the analysis of gene expression and genetic variations while maintaining confidentiality, ultimately fostering trust between patients and researchers. The goal is to enhance data accessibility for researchers while safeguarding patient information.
Why it matters
Potential benefit: If successful, this research could lead to safer and more widespread sharing of genetic data, improving our understanding of diseases and enhancing patient care.
How similar studies have gone: Other research has shown promise in using cryptographic techniques for data privacy, indicating that this approach could be effective.
Where this research is happening
-
New York Genome Center
New York, United States Active
Researchers
- Principal investigator: Gursoy, Gamze — New York Genome Center
- Study coordinator: Gursoy, Gamze
Related research
Other NIH-funded projects on the same topics.
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Understanding genetic networks in autism and bipolar disorders to improve biology and treatment
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.