Protecting kidney health in young children with spina bifida

Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE)

NIH-funded research Lurie Children's Hospital of Chicago · NIH-11400834

This project tests a standardized set of urology 'best practices' aimed at protecting kidney function in infants and young children born with spina bifida.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionLurie Children's Hospital of Chicago NIH-funded
Lab location1 site (Chicago, United States)
Project IDNIH-11400834 on NIH RePORTER

What this research studies

Researchers are enrolling infants and young children with spina bifida at multiple pediatric centers to follow their urinary and kidney health over time. The team uses a standardized UMPIRE protocol of urologic care and collects clinical data including kidney function tests, imaging for scarring or upper-tract changes, bladder function measures, urinary tract infection history, continence status, and any surgical interventions. Data will be correlated with outcomes over several years to identify which management steps best preserve kidney health and reduce complications. Findings will be used to refine the best-practices protocol to improve care across centers.

Who could benefit from this research

Good fit: Infants and young children diagnosed with spina bifida who are receiving urologic follow-up at participating pediatric centers are the ideal candidates.

Not a fit: Children without spina bifida, or older adolescents and adults outside the infant/young-child enrollment window, are unlikely to benefit directly from this project.

Why it matters

Potential benefit: If successful, this work could produce clearer care guidelines that reduce kidney damage, UTIs, and need for surgery in children with spina bifida.

How similar studies have performed: Previous guideline-driven and single-center efforts have guided care, but this large multi-center protocol linking specific practices to long-term kidney outcomes is relatively novel.

Where this research is happening

Chicago, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.