PROGRESS Center coordination for families with children at genetic risk for autism
Core A: Administrative Core
This project brings together researchers to follow and support families with children who have an identified genetic risk for autism, tracking the child's development and family impacts.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-11176965 on NIH RePORTER |
What this research studies
If you join, the PROGRESS Center's administrative team will coordinate several linked projects that identify children with an identified genetic risk for autism, follow their neurobehavioral development over time, and study how genetic information affects parents and families. The Admin Core organizes research teams, schedules assessments, manages data flow to the Assessment and Statistical Cores, and helps with outreach so findings reach families and clinicians. Participation may involve developmental visits, questionnaires, and sharing medical or genetic information for your child. The Admin Core's role is to keep the center running smoothly so the other teams can focus on understanding development and supporting families.
Who could benefit from this research
Good fit: Ideal candidates are families with children (infancy through early childhood) who have an identified genetic risk for autism and are willing to take part in ongoing follow-up and assessments.
Not a fit: Families without a known genetic risk for autism, adults not involved in caregiving for such children, or those unwilling to participate in follow-up visits are unlikely to directly benefit from this center's cohort activities.
Why it matters
Potential benefit: If successful, this work could help families get earlier, better-tailored support and improve understanding of how genetic risk affects child development and family needs.
How similar studies have performed: Previous longitudinal cohorts of infants at familial or genetic risk have provided useful early markers and family outcome insights, but this coordinated center approach combining genetic risk, family impact, and longitudinal neurobehavioral tracking is relatively new.
Where this research is happening
New York, United States
- Columbia University Health Sciences — New York, United States (Active)
Researchers
- Principal investigator: Chung, Wendy K — Columbia University Health Sciences
- Study coordinator: Chung, Wendy K
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.