Preventing Alzheimer's in Families with Inherited Mutations

DIAN-TU Primary Prevention Trial

NIH-funded research Washington University · NIH-11175976

This project tests a treatment designed to stop amyloid buildup in people who carry inherited Alzheimer's mutations before they have any symptoms.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionWashington University NIH-funded
Lab location1 site (Saint Louis, United States)
Project IDNIH-11175976 on NIH RePORTER

What this research studies

If I join, I would be enrolled in a four-year, randomized, double-blind study comparing an active treatment to placebo aimed at preventing amyloid plaques from forming. The trial enrolls adults who carry dominantly inherited Alzheimer's mutations but are still cognitively normal and far from their family's expected symptom onset. Participants will have regular biomarker checks such as brain PET scans and fluid tests to see whether amyloid deposition is blocked. The study is run at DIAN-TU sites in multiple countries and languages so follow-up visits will occur at participating centers.

Who could benefit from this research

Good fit: Ideal candidates are cognitively normal adults who carry a known dominantly inherited Alzheimer's mutation, are more than 15 years before their estimated symptom onset, and have little or no amyloid on baseline scans.

Not a fit: People without a dominantly inherited Alzheimer's mutation, those already showing cognitive symptoms, or those with substantial amyloid plaque at baseline are unlikely to benefit from this prevention-focused trial.

Why it matters

Potential benefit: If successful, the treatment could delay or prevent Alzheimer's symptoms in people with inherited mutations by stopping amyloid from forming.

How similar studies have performed: Prior anti-amyloid trials in symptomatic patients largely failed to show clear cognitive benefit, and DIAN-TU has completed secondary prevention studies, making this primary prevention approach novel and not yet proven.

Where this research is happening

Saint Louis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndromeAlzheimer's Disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.