Personalized colorectal cancer screening for people with Lynch syndrome

Optimal Colorectal Cancer Surveillance Strategy for Lynch Syndrome by Genotype

NIH-funded research Columbia University Health Sciences · NIH-11212167

This project aims to find the best colonoscopy schedule for people with Lynch syndrome based on their specific gene.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionColumbia University Health Sciences NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11212167 on NIH RePORTER

What this research studies

You would be part of work that looks at how different Lynch syndrome genes change your risk of colorectal cancer and how often you actually need colonoscopies. The team will use genetic and medical records from people with Lynch syndrome and build computer models to compare screening schedules tailored to each gene. They will estimate likely cancer cases, deaths, number of colonoscopies, and effects on quality of life for each schedule. Researchers will also gather input on whether patients and doctors find the tailored plans acceptable.

Who could benefit from this research

Good fit: People with a confirmed pathogenic variant in a Lynch syndrome gene (for example MLH1, MSH2, MSH6, PMS2, or EPCAM) who are candidates for colorectal cancer surveillance would be ideal.

Not a fit: People without a confirmed Lynch syndrome genetic diagnosis or those already being treated for colorectal cancer are unlikely to benefit from this surveillance-focused work.

Why it matters

Potential benefit: If successful, this could lower unnecessary colonoscopies for some people while keeping cancer risk low and improving quality of life.

How similar studies have performed: Prior research shows different Lynch genes carry different cancer risks, but personalized surveillance schedules have not been widely tested, so this approach is partly novel though grounded in existing evidence.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Cancer ControlCancer Control ScienceCancer ModelCancerModelCancers
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.