Pediatric Heart Network data hub for children's heart care
Official title: Pediatric Heart Network Data Coordinating Center
Funded at New England Research Institutes, INC. · NIH-11252768 · Data updated 2026-11-12
This project organizes and manages data and clinical trials to speed improvements in care for children with heart conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | New England Research Institutes, INC. NIH-funded |
| Lab location | 1 site (Wilmington, UNITED STATES) |
| Project start | January 1, 2025 |
| Project end | December 31, 2031 |
| Funding year | 2026 |
| Award (this year) | $5,196,628 |
| NIH project number | 5U24HL172722-02 |
| Project ID | NIH-11252768 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children with congenital or other pediatric heart conditions who receive care at hospitals participating in the Pediatric Heart Network are the most likely candidates for related studies.
✕Less likely to help
Patients who are not seen at PHN-affiliated centers or who do not have pediatric cardiac conditions are unlikely to be affected by this funding.
What this research studies
From a patient's view, this team connects hospitals and doctors across the Pediatric Heart Network to run studies that matter for children with heart problems. They collect and manage study data, build electronic systems to keep information secure and usable, and use modern statistical methods to make sense of results. The center also helps design trials, distributes funding to sites, and shares findings so families and clinicians can benefit. They train new investigators so future studies continue and improve over time.
Why it matters
Potential benefit: If successful, the DCC could make trials faster and more reliable, helping bring better treatments and care to children with heart disorders sooner.
How similar studies have gone: The Pediatric Heart Network has operated for over two decades and has supported many successful multicenter trials, so this coordination approach is well established.
Where this research is happening
-
New England Research Institutes, INC.
Wilmington, United States Active
Researchers
- Principal investigator: Miller, Julie Elaine — New England Research Institutes, INC.
- Study coordinator: Miller, Julie Elaine
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.