Pediatric Gastroparesis Registry Data Center — Year 3
PGpR2 Year 3 Supplement for the Scientific Data Research Center (SDRC) of the GpCRC 4
This project continues collecting health information and blood/tissue samples from children and young adults (ages 8–24) with gastroparesis symptoms to build a registry that helps researchers learn more about the condition.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Johns Hopkins University NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project ID | NIH-11359443 on NIH RePORTER |
What this research studies
You would have your medical history, symptoms, and biospecimens (like blood) collected and securely entered into a pediatric gastroparesis registry. Multiple pediatric centers use a single institutional review board and standardized forms so data and samples are consistent across sites. The Johns Hopkins Scientific Data Research Center manages the data system, quality checks, biostatistics, and supports analyses and publications. Banked samples may be used in future ancillary studies to search for causes, biomarkers, or treatment targets.
Who could benefit from this research
Good fit: Ideal candidates are children and young adults ages 8–24 who have symptoms of gastroparesis or related functional dyspepsia and are willing to share medical data and provide biospecimens at a participating pediatric center.
Not a fit: People without gastroparesis symptoms, those older than 24, or those unwilling to provide medical records or samples would not benefit from participating in this registry.
Why it matters
Potential benefit: If successful, the registry could speed discovery of causes and biomarkers and guide better diagnosis and treatments for children and young adults with gastroparesis symptoms.
How similar studies have performed: This effort builds on the long-running Gastroparesis Clinical Research Consortium and similar registries have helped advance adult gastroparesis research, though pediatric-specific mechanistic data remain limited.
Where this research is happening
Baltimore, United States
- Johns Hopkins University — Baltimore, United States (Active)
Researchers
- Principal investigator: Shade, David M — Johns Hopkins University
- Study coordinator: Shade, David M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.