Patient and Family Reactions to biomarker-informed ADRD diagnoses
Official title: Patient and Family Member Reactions to Biomarker-Informed ADRD Diagnoses
Funded at University of California at Davis · NIH-11583871 · Data updated 2026-11-12
This study asks how patients with Alzheimer’s disease and their families feel about diagnoses that include biomarker information.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California at Davis NIH-funded |
| Lab location | 1 site (Davis, United States) |
| Project start | March 1, 2023 |
| Project end | February 29, 2028 |
| Funding year | 2026 |
| Award (this year) | $412,616 |
| NIH project number | 3R01AG080591-03S1 |
| Project ID | NIH-11583871 on NIH RePORTER |
Who could benefit from this research
✓Could help
Patients with cognitive disorders who have or may receive biomarker-informed AD diagnoses and their family members.
✕Less likely to help
Participants not experiencing biomarker-informed testing or those outside the recruitment networks may have limited direct benefit.
What this research studies
This project focuses on understanding how patients with cognitive disorders and their families react when a diagnosis includes information from AD biomarkers. Researchers will enroll participants through clinical referral partners and follow them for 6 months to observe emotional and social responses. The study builds on existing networks to continue recruitment after earlier trials were disrupted, aiming to capture real-world experiences. The goal is to inform clinicians and families about the personal impact of biomarker-informed diagnoses and improve care approaches.
Why it matters
Potential benefit: If successful, patients and families may experience more supportive, tailored communication and decision-making around biomarker-informed diagnoses.
How similar studies have gone: Prior work suggests biomarker disclosure does not increase depression or anxiety in selected groups, but results in real-world diverse populations are needed.
Where this research is happening
-
University of California at Davis
Davis, United States Active
Researchers
- Principal investigator: Lingler, Jennifer Hagerty — University of California at Davis
- Study coordinator: Lingler, Jennifer Hagerty
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.