Parent-reported breathing and care issues when preterm babies with BPD go home
Patient-Reported Outcomes to Understand Infant to Early Childhood Transition of Infants with Bronchopulmonary Dysplasia
This project collects parents' reports to find breathing problems and care barriers for preterm infants with bronchopulmonary dysplasia as they leave the NICU and enter early childhood.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Medical College of Wisconsin NIH-funded |
| Lab location | 1 site (Milwaukee, United States) |
| Project ID | NIH-11269215 on NIH RePORTER |
What this research studies
If your baby was born preterm and has bronchopulmonary dysplasia (BPD), researchers want to create parent questionnaires that better capture breathing symptoms and the real-world challenges families face after NICU discharge. Families will be asked to complete surveys about symptoms, equipment, medications, and access to specialty care, and those responses will be linked to medical records like hospital visits. The team will refine these measures to improve how risk is identified and to look for transition practices that reduce later respiratory problems. Participation may involve periodic surveys and sharing clinical follow-up information through early childhood.
Who could benefit from this research
Good fit: Parents or caregivers of preterm infants diagnosed with bronchopulmonary dysplasia, particularly those recently discharged from the NICU and followed into early childhood.
Not a fit: Full-term infants or children without BPD, and families unable to complete follow-up surveys or share medical records, are unlikely to benefit directly from this work.
Why it matters
Potential benefit: Could lead to better follow-up plans, reduce breathing problems, and lower hospital visits for preterm infants with BPD if successful.
How similar studies have performed: Existing questionnaires were adapted from pediatric asthma and often miss NICU-to-home issues, so creating BPD-specific parent-reported measures is a relatively new and needed approach.
Where this research is happening
Milwaukee, United States
- Medical College of Wisconsin — Milwaukee, United States (Active)
Researchers
- Principal investigator: Lagatta, Joanne M — Medical College of Wisconsin
- Study coordinator: Lagatta, Joanne M
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.