Palliative care at home for people with dementia

Who could benefit from this research

What this research studies

If you take part, you may be randomly assigned to a home-based palliative care team or to usual care, and study staff will follow outcomes over time. The care team centers on specially trained community health workers, social workers, and registered nurses who are supported by a palliative care nurse practitioner and physician. The trial runs across four hospitals and is single-blinded, and the program focuses on symptom control, daily activities, and support for family caregivers. The model is designed to be more scalable than specialist-only palliative teams by using community-based caregivers alongside clinicians.

Why it matters

Where this research is happening

• Icahn School of Medicine at Mount Sinai
  New York, United States Active

Researchers

• Principal investigator: Morrison, R. Sean — Icahn School of Medicine at Mount Sinai
• Study coordinator: Morrison, R. Sean

Related research

Other NIH-funded projects on the same topics.

• Better palliative care for Black and Hispanic people with Parkinson's and Lewy body dementia

  Designing culturally-tailored palliative care programs to better meet the needs of Black and Hispanic adults living with Parkinson's disease and Lewy body dementia.

  NIH research University of Rochester · Rochester, United States · NIH-11290717

• Improving palliative care for older adults with dementia who speak limited English

  This study is looking at the difficulties older adults with Alzheimer's and similar conditions who don't speak much English face when trying to get palliative care, and it aims to find ways to make communication better and improve their quality of life.

  NIH research University of Washington · Seattle, United States · NIH-11128516

• Improving palliative care for people with Parkinson's disease and related disorders in Black and Hispanic communities

  This study is all about improving care for people with Parkinson's disease and Lewy Body Dementia, especially in Black and Hispanic communities, by understanding their specific needs and finding better ways to support them and their families.

  NIH research University of Rochester · Rochester, United States · NIH-11021329

• Integrated palliative care for Parkinson’s disease and PD dementia: reducing low-value care and disparities

  A study in people with Parkinson’s disease or Parkinson disease dementia tests how integrating palliative care can cut unnecessary hospitalizations and disparities.

  NIH research University of Pennsylvania · Philadelphia, United States · NIH-10973972

• Home-based palliative care for patients with dementia

  This study is looking at a new way to provide home care for older adults with dementia and their caregivers, using a team of trained professionals to help manage symptoms and make life easier for families.

  NIH research Icahn School of Medicine at Mount Sinai · New York, United States · NIH-10895555

• Training assisted living staff to better care for patients with dementia

  This study is all about helping staff at assisted living facilities learn how to have better conversations with people with Alzheimer's and their families about end-of-life care, so they can feel more comfortable and supported during this important time.

  NIH research University of South Florida · Tampa, United States · NIH-10885605

About this research

1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
3. For full project details, budget, and progress reports, visit the official NIH RePORTER page.