Palliative care at home for people with dementia

Palliative Care at Home for Patients with Dementia

NIH-funded research Icahn School of Medicine at Mount Sinai · NIH-11176362

A team-based home palliative care program using community health workers, nurses, and social workers to support older adults with advanced dementia and their family caregivers.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionIcahn School of Medicine at Mount Sinai NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-11176362 on NIH RePORTER

What this research studies

If you take part, you may be randomly assigned to a home-based palliative care team or to usual care, and study staff will follow outcomes over time. The care team centers on specially trained community health workers, social workers, and registered nurses who are supported by a palliative care nurse practitioner and physician. The trial runs across four hospitals and is single-blinded, and the program focuses on symptom control, daily activities, and support for family caregivers. The model is designed to be more scalable than specialist-only palliative teams by using community-based caregivers alongside clinicians.

Who could benefit from this research

Good fit: Ideal candidates are older adults with advanced Alzheimer’s disease or related dementias who live at home and have a family caregiver willing to participate.

Not a fit: People in early-stage dementia, those living in nursing homes or other institutions, or those without an engaged caregiver may not benefit from this home-focused program.

Why it matters

Potential benefit: This approach could improve symptom control, daily functioning, and reduce caregiver stress for people with advanced dementia if successful.

How similar studies have performed: Home palliative care has helped people with serious illnesses in prior studies, but few randomized trials have tested a community-health-worker-led model specifically for advanced dementia.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease or a related dementia
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.