North Carolina cancer data resource
Statewide Cancer Data
This project links cancer registry and insurance records to help researchers study cancer care and outcomes for people in North Carolina.
Quick facts
| Grant type | P30 center grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project ID | NIH-11469266 on NIH RePORTER |
What this research studies
From a patient's point of view, this resource combines two parts: rapid case reporting that captures diagnosis details soon after detection and a linked database that connects registry cases to Medicare, Medicaid, and private insurance claims. The linked claims dataset covers millions of beneficiaries and about 750,000 North Carolina cancer cases from the past decade. Staff use specialized data management and analytic methods to clean, link, and analyze these population-level records. The goal is to support real-world studies about cancer care, outcomes, and access across the state.
Who could benefit from this research
Good fit: People diagnosed with cancer in North Carolina whose diagnosis and insurance records are captured in the state registry and linked claims files would be represented in this resource.
Not a fit: People who live outside North Carolina or whose cancer or insurance records are not included in the state registry and linked claims data are unlikely to be included or benefit directly from this resource.
Why it matters
Potential benefit: If successful, this resource could help spot gaps in cancer care and speed research that improves treatment, follow-up, and access for people with cancer in North Carolina.
How similar studies have performed: Linking cancer registries with insurance claims has been used successfully before to generate important findings about cancer care and outcomes, so this approach is established and useful.
Where this research is happening
Chapel Hill, United States
- Univ of North Carolina Chapel Hill — Chapel Hill, United States (Active)
Researchers
- Principal investigator: Olshan, Andrew — Univ of North Carolina Chapel Hill
- Study coordinator: Olshan, Andrew
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.