Nebulin's role in skeletal muscle and nemaline myopathy

Roles of Nebulin in Structure and Function of Striated Muscle

NIH-funded research University of Arizona · NIH-11146556

This project looks at how the huge muscle protein nebulin works and how its faults lead to nemaline myopathy, to help people with this congenital muscle weakness.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of Arizona NIH-funded
Lab location1 site (Tucson, United States)
Project IDNIH-11146556 on NIH RePORTER

What this research studies

The team studies nebulin using mouse models that mimic severe and milder forms of nemaline myopathy and by analyzing genes and proteins from muscle. They apply super-resolution imaging, low-angle X-ray diffraction, transcriptomics, proteomics, and muscle biomechanics to study nebulin from the single-molecule level up to intact muscles. A key aim is to understand how nebulin and partners like leiomodin-2 set thin filament lengths and affect muscle force, which could point to ways to correct defects.

Who could benefit from this research

Good fit: Ideal candidates would be people with nemaline myopathy, especially those with confirmed or suspected nebulin mutations, who are willing to contribute samples or participate in related studies.

Not a fit: People with unrelated neuromuscular conditions or myopathies not caused by nebulin mutations may not directly benefit from this work.

Why it matters

Potential benefit: If successful, this work could reveal mechanisms and targets that lead to new treatments to improve strength and function for people with nemaline myopathy.

How similar studies have performed: Prior genetic and basic studies have shown nebulin mutations cause nemaline myopathy and clarified some functions, but translating those findings into therapies is still largely unproven.

Where this research is happening

Tucson, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.