National tracking of aging, dementia, and family caregiving

The National Health and Aging Trends Study and National Study of Caregiving

NIH-funded research Johns Hopkins University · NIH-11310209

Collects yearly health, memory, activity, and caregiving information from older adults and their family caregivers across the U.S. to learn more about aging and dementia.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionJohns Hopkins University NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11310209 on NIH RePORTER

What this research studies

You or a family member could be invited to share health, memory, and daily function information in yearly interviews as part of a nationally representative group of Medicare enrollees. Older participants typically have an annual in-person visit, while family caregivers take part through web or phone follow-ups. The project also adds wearable activity monitors to measure movement, sedentary time, and sleep, and links participants' residential histories to neighborhood data. These combined approaches are meant to track how disability and dementia develop over time and how care needs affect families and communities.

Who could benefit from this research

Good fit: Ideal participants are Medicare-enrolled older adults (including those with or at risk for Alzheimer's or related dementias) and their family or unpaid caregivers anywhere in the United States.

Not a fit: People seeking a new treatment or immediate clinical benefit, or individuals who are not older adults or caregivers, are unlikely to receive direct medical benefit from participation.

Why it matters

Potential benefit: If successful, the work could improve understanding of how dementia changes daily life and guide better services, supports, and policies for older adults and their caregivers.

How similar studies have performed: This continues and expands well-established national aging and caregiving cohorts that have previously produced important findings about dementia, disability, and caregiver burden.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer's Disease and its related dementiasAlzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease and related forms of dementia
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.