Myotonic Dystrophy Center leadership and coordination
Administrative Core
['FUNDING_OTHER'] · UNIVERSITY OF FLORIDA · NIH-11161602
This program supports coordinated research and patient-engaged activities to advance treatments for people with myotonic dystrophy (DM1 and DM2).
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF FLORIDA (nih funded) |
| Locations | 1 site (GAINESVILLE, UNITED STATES) |
| Trial ID | NIH-11161602 on ClinicalTrials.gov |
What this research studies
From a patient’s perspective, this Administrative Core brings together teams at the University of Florida and the University of Rochester to organize and support work on DM1 and DM2. It manages funding, regulatory compliance, privacy protections, and communication between basic scientists, clinical teams, advocacy groups, patients, and families. The Core helps recruit and enroll participants in the Center’s projects and monitors safety and study coordination across campuses.
Who could benefit from this research
Good fit: Adults with myotonic dystrophy (DM1 or DM2) who are willing to engage with research teams at participating centers are the most likely candidates to be involved.
Not a fit: People without DM or those who cannot travel to participating sites are unlikely to receive direct benefit from this administrative-focused program.
Why it matters
Potential benefit: If successful, this could speed development of safe and effective therapies for people with myotonic dystrophy and make it easier to join and navigate clinical studies.
How similar studies have performed: Previous Wellstone Centers and collaborative DM programs have a track record of advancing understanding and therapy development, so this builds on established, productive models.
Where this research is happening
GAINESVILLE, UNITED STATES
- UNIVERSITY OF FLORIDA — GAINESVILLE, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: SWANSON, MAURICE SCOTT — UNIVERSITY OF FLORIDA
- Study coordinator: SWANSON, MAURICE SCOTT
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.