More accurate cancer counts in local registries

Improving measurement of cancer registry completeness

['FUNDING_R01'] · EMORY UNIVERSITY · NIH-11194933

This work builds better ways to count cancer cases so registry numbers more fairly reflect people from diverse communities like Asian, Native American, and Hispanic groups.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorEMORY UNIVERSITY (nih funded)
Locations1 site (ATLANTA, UNITED STATES)
Trial IDNIH-11194933 on ClinicalTrials.gov

What this research studies

From your perspective, researchers will use existing cancer registry records and statistical models to fix gaps in how cancer cases are counted. They will create methods that include commonly missed cancers (such as prostate and breast) and that work better for areas with many Asian, Native American, or Hispanic residents. The team will compare expected case counts to reported counts and adjust methods to reduce undercounting in underserved groups. Improved measurement should help make public health decisions and resource distribution more accurate for your community.

Who could benefit from this research

Good fit: People whose cancer diagnoses appear in state or regional cancer registries, especially patients from Asian, Native American, or Hispanic communities, are most directly related to this work.

Not a fit: People without recorded cancer cases or those whose health data are not included in registries would not directly benefit from this project.

Why it matters

Potential benefit: If successful, this could give health agencies more accurate cancer counts to guide screening, prevention, and treatment resources for undercounted communities.

How similar studies have performed: Existing methods for estimating registry completeness exist but have repeatedly undercounted breast and prostate cancers and underestimated cases in Asian, Native American, and Hispanic populations, so this project fills known gaps.

Where this research is happening

ATLANTA, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.