Monitoring for Creutzfeldt-Jakob Disease in people who received human growth hormone

CREUTZFELDT-JAKOB DISEASE SURVEILLANCE IN RECIPIENTS OF HUMAN GROWTH HORMONE

NIH-funded research Westat, INC. · NIH-11128313

This study is looking at whether people who have received human growth hormone treatments might be more likely to develop Creutzfeldt-Jakob Disease, a rare brain condition, so we can better understand the safety of these treatments for patients.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionWestat, INC. NIH-funded
Lab location1 site (Rockville, United States)
Project IDNIH-11128313 on NIH RePORTER

What this research studies

This research focuses on tracking the occurrence of Creutzfeldt-Jakob Disease (CJD) in individuals who have received human growth hormone (hGH) treatments. The study aims to gather data on potential links between hGH administration and the development of CJD, a rare but serious neurodegenerative condition. By analyzing patient health records and conducting surveillance, the research seeks to identify any patterns or cases of CJD among these patients. This information could help improve safety protocols and inform future treatment guidelines for hGH recipients.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals who have received human growth hormone therapy.

Not a fit: Patients who have never received human growth hormone or those with pre-existing neurological conditions unrelated to CJD may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could enhance the safety of human growth hormone treatments by identifying risks associated with CJD.

How similar studies have performed: Previous research has indicated potential risks associated with human growth hormone, making this surveillance approach both relevant and necessary.

Where this research is happening

Rockville, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Creutzfeldt-Jacob DiseaseCreutzfeldt-Jakob DiseaseCreutzfeldt-Jakob SyndromeDisease SurveillanceJakob-Creutzfeldt Disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.