Measuring privacy risks in sharing genomic data
Realistic quantification of potential privacy loss from genomic summary results
['FUNDING_OTHER'] · COLUMBIA UNIVERSITY HEALTH SCIENCES · NIH-10839826
This study looks at how sharing genetic information might put your privacy at risk and aims to create helpful tools to keep your sensitive data safe while still allowing important research to happen.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | COLUMBIA UNIVERSITY HEALTH SCIENCES (nih funded) |
| Locations | 1 site (NEW YORK, UNITED STATES) |
| Trial ID | NIH-10839826 on ClinicalTrials.gov |
What this research studies
This research investigates how sharing genomic data can lead to privacy loss for individuals. It aims to develop statistical tools to quantify the risk of sensitive information being leaked when genomic data is shared, especially in scenarios where the data may be incomplete or noisy. By analyzing different data sharing scenarios, the research seeks to create risk assessment tools that can help protect patient privacy while allowing for valuable genetic research. This work is particularly relevant in light of recent changes in policies regarding genomic data sharing.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals who have participated in genomic studies or have their genomic data shared for research purposes.
Not a fit: Patients who have not participated in genomic studies or do not have genomic data shared may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could enhance the privacy protections for individuals whose genomic data is shared, thereby encouraging more participation in genomic studies.
How similar studies have performed: While privacy concerns in genomic data sharing have been acknowledged, this specific approach to quantifying privacy loss is relatively novel and has not been extensively tested in prior research.
Where this research is happening
NEW YORK, UNITED STATES
- COLUMBIA UNIVERSITY HEALTH SCIENCES — NEW YORK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: GURSOY, GAMZE — COLUMBIA UNIVERSITY HEALTH SCIENCES
- Study coordinator: GURSOY, GAMZE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.