Measuring caregiving experiences of sexual minority adults caring for people with Alzheimer's and related dementias
Enhancing Measurement and Characterization of Roles and Experiences of Sexual Minority Caregivers of Persons living with Alzheimer's Disease and Related Dementias
This project will create and test new survey and interview tools to better capture the experiences of sexual minority adults who care for people with Alzheimer's or related dementias.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Nevada Las Vegas NIH-funded |
| Lab location | 1 site (Las Vegas, United States) |
| Project ID | NIH-11085123 on NIH RePORTER |
What this research studies
You would help researchers develop better questions and surveys that reflect the real experiences of sexual minority caregivers of people with Alzheimer's and related dementias. The team will work with community advisors and conduct focus groups (about 8) and in-depth interviews (about 40) to learn what matters most. Those findings will guide development and validation of new measurement tools using mixed qualitative and quantitative methods. Validated measures will be shared so future studies and providers can better recognize and support diverse caregiver needs.
Who could benefit from this research
Good fit: Adults who identify as sexual minorities and currently provide unpaid care to someone living with Alzheimer's disease or a related dementia are the ideal participants.
Not a fit: People who are not sexual minority caregivers—such as paid professional caregivers or adults not providing ADRD care—are unlikely to directly benefit from participating.
Why it matters
Potential benefit: If successful, the new measures could help healthcare providers, researchers, and policymakers better identify and address the specific needs of sexual minority caregivers and improve support for people with ADRD.
How similar studies have performed: Prior studies have documented disparities for sexual minority caregivers but few measurement tools have been tailored or validated for this group, so this work is building on existing findings while filling a notable gap.
Where this research is happening
Las Vegas, United States
- University of Nevada Las Vegas — Las Vegas, United States (Active)
Researchers
- Principal investigator: Flatt, Jason Dane — University of Nevada Las Vegas
- Study coordinator: Flatt, Jason Dane
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.