Making gene therapy safer and more effective for Friedreich's ataxia

Immunomodulation Approaches to Improve Safety And Efficacy of Gene Therapy Treatment in Friedreich’s Ataxia

NIH-funded research University of Florida · NIH-11179356

Looks at using immune-calming strategies to help AAV gene therapy work better and be safer for people with Friedreich's ataxia.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniversity of Florida NIH-funded
Lab location1 site (Gainesville, United States)
Project IDNIH-11179356 on NIH RePORTER

What this research studies

If I have Friedreich's ataxia, this project is developing a gene replacement treatment that uses a harmless AAV virus to deliver a working frataxin gene to affected tissues. Because the body can react to the AAV capsid and cause side effects or shorten benefit, the team is adding immune-modulating approaches to reduce those reactions. The researchers have completed animal toxicology and biodistribution studies and are preparing a first-in-human trial under an IND. When approved, patients would be enrolled at clinical sites to receive the gene therapy with added immune management and be followed for safety and durability of benefit.

Who could benefit from this research

Good fit: People with genetically confirmed Friedreich's ataxia, typically those with early-onset disease who meet the trial's age and health criteria, are the intended candidates.

Not a fit: People without Friedreich's ataxia, those ineligible for AAV-delivered gene therapy, or those who cannot receive immunomodulation would not be expected to benefit.

Why it matters

Potential benefit: Could make AAV gene replacement safer and increase how long the treatment helps people with Friedreich's ataxia.

How similar studies have performed: AAV-based gene replacement has shown promise in FA animal models and in other genetic diseases, but combining AAV delivery with targeted immune suppression for FA is a newer approach.

Where this research is happening

Gainesville, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.