Long-term tracking of kidney and heart health in children and teens with chronic kidney disease

Chronic Kidney Disease in Children (CKiD V)

NIH-funded research Children's Mercy Hosp (Kansas City, Mo) · NIH-11136308

Tracking children and teens with chronic kidney disease to learn how kidney function and heart health change as they grow into young adults.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionChildren's Mercy Hosp (Kansas City, Mo) NIH-funded
Lab location1 site (Kansas City, United States)
Project IDNIH-11136308 on NIH RePORTER

What this research studies

If you join, the team will continue following kids already in CKiD and will invite teens aged 14–17 to join so we can watch kidney function and heart health as you move into adulthood. Most data can be collected remotely through home or local lab visits for vitals and blood tests, and by pulling relevant information from your electronic health record. You can report symptoms and other information through secure web or mobile forms, and the team will combine clinical markers with social and health data to build prediction tools. The project links with other pediatric kidney cohorts to improve comparisons and learnings.

Who could benefit from this research

Good fit: Children and adolescents with chronic kidney disease, especially teens aged about 14–17 who are transitioning toward adult care, are ideal candidates.

Not a fit: People without chronic kidney disease or those not in the pediatric/young-adult age range are unlikely to receive direct benefit from this project.

Why it matters

Potential benefit: Results could help identify kids at higher risk of faster kidney decline so doctors can target monitoring and early treatment.

How similar studies have performed: Earlier CKiD and related pediatric kidney cohorts have provided important findings about childhood CKD, while the combination of remote data collection and machine-learning prediction in teens is a newer extension of that work.

Where this research is happening

Kansas City, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.