Long-term symptom and function tracking for throat (oropharyngeal) cancer survivors
Core C: Patient-Reported Outcomes & Function (PROF)
This program collects regular self-reports and clinical measures to track long-term symptoms and daily functioning in people who had oropharyngeal (throat) cancer.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Tx Md Anderson Can Ctr NIH-funded |
| Lab location | 1 site (Houston, United States) |
| Project ID | NIH-11180378 on NIH RePORTER |
What this research studies
You would be asked to share regular patient-reported questionnaires about symptoms, quality of life, and daily function alongside clinician-graded outcomes and chart-based data from your medical record. The core team runs the cohort operations: recruiting and keeping participants, managing the data, and linking survey responses with clinical events from diagnosis through many years of survivorship. They will extend follow-up beyond five years and work with project investigators to create and test practical measures that can be used in clinics. Your responses and clinical data help build validated markers of delayed treatment side effects to guide better follow-up care and future research.
Who could benefit from this research
Good fit: Ideal candidates are people treated for oropharyngeal (throat) cancer who can complete regular questionnaires and allow access to their clinical records, typically patients followed at MD Anderson.
Not a fit: People with cancers outside the oropharynx or those unwilling/unable to complete surveys or share medical chart information are unlikely to receive direct benefit from participating in this core.
Why it matters
Potential benefit: If successful, this work could help doctors spot and manage long-term side effects earlier and tailor follow-up care to improve survivors' quality of life.
How similar studies have performed: This effort builds on over eight years of successful longitudinal PRO collection in oropharyngeal cancer survivors that has already supported many investigators and informed survivorship research.
Where this research is happening
Houston, United States
- University of Tx Md Anderson Can Ctr — Houston, United States (Active)
Researchers
- Principal investigator: Barbon, Carly E. a. — University of Tx Md Anderson Can Ctr
- Study coordinator: Barbon, Carly E. a.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.