Long-term study of frontotemporal lobar degeneration and related dementias

Clinical Core

NIH-funded research Mayo Clinic Rochester · NIH-10889900

This study is looking for people with frontotemporal lobar degeneration and similar dementias to help gather important information and samples that could lead to better treatments for these conditions in the future.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionMayo Clinic Rochester NIH-funded
Lab location1 site (Rochester, United States)
Project IDNIH-10889900 on NIH RePORTER

What this research studies

This research focuses on collecting extensive data and biological samples from individuals with frontotemporal lobar degeneration (FTLD) and related dementias. By enrolling participants from various sites, the study aims to gather longitudinal clinical and neuropsychological data, as well as MRI scans, to better understand these conditions. The goal is to create a comprehensive database that can be used to develop new therapies that may modify the disease's progression. Participants will contribute to a larger effort to improve treatment options for those affected by these dementias.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals diagnosed with frontotemporal lobar degeneration or related dementias, as well as their family members.

Not a fit: Patients with other types of dementia not related to frontotemporal lobar degeneration may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to the development of effective therapies for frontotemporal lobar degeneration and related dementias.

How similar studies have performed: Previous research efforts in similar areas have shown promise in advancing our understanding and treatment of frontotemporal lobar degeneration.

Where this research is happening

Rochester, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndromeAlzheimer's DiseaseAlzheimer's disease and related dementiaAlzheimer's disease and related disorders
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.