Long-term outcomes after childhood out-of-hospital cardiac arrest
P-ICECAP Extended
This project follows children who survived cardiac arrest outside the hospital to learn how they function and how their families cope over several years.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Hugo W. Moser Res Inst Kennedy Krieger NIH-funded |
| Lab location | 1 site (Baltimore, United States) |
| Project ID | NIH-11298962 on NIH RePORTER |
What this research studies
You (or your child) would be re-contacted if they survived an out-of-hospital cardiac arrest and took part in prior pediatric cardiac arrest trials so clinicians can collect information at school age and beyond. The team will use standardized tests and caregiver questionnaires to measure children's adaptive functioning, cognitive and developmental skills, and family burden. Researchers will build on data from the multi-center THAPCA-OH trial and the P-ICECAP project to compare outcomes by age, disability level, and treatments received. Follow-up may include in-person visits at participating centers, remote assessments, and review of prior medical records.
Who could benefit from this research
Good fit: Children who survived an out-of-hospital cardiac arrest (especially those previously enrolled in the THAPCA-OH or P-ICECAP studies) and their caregivers.
Not a fit: Children whose cardiac arrest occurred in the hospital, those not reachable or unwilling to join follow-up, or families unable to travel to participating centers are unlikely to be included and may not receive direct benefit.
Why it matters
Potential benefit: If successful, this work could help clinicians identify children who need long-term rehabilitation or support and guide families to resources that reduce caregiver burden.
How similar studies have performed: Earlier multi-center work (THAPCA-OH) described one-year outcomes showing substantial disability and family burden, but long-term follow-up beyond one year is limited so this extension fills an important gap.
Where this research is happening
Baltimore, United States
- Hugo W. Moser Res Inst Kennedy Krieger — Baltimore, United States (Active)
Researchers
- Principal investigator: Suskauer, Stacy Jennifer Marcus — Hugo W. Moser Res Inst Kennedy Krieger
- Study coordinator: Suskauer, Stacy Jennifer Marcus
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.