Life after an ovarian cancer diagnosis: understanding survivors' experiences
UNTOLD: UNderstanding The experience of Ovarian cancer ? Life after Diagnosis: A Mixed Methods Approach
We gather survivors' experiences to learn what physical and emotional challenges and care gaps people face after ovarian cancer.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-11186959 on NIH RePORTER |
What this research studies
We are asking ovarian cancer survivors from diverse backgrounds to share their experiences through surveys and in-depth interviews. The project will document physical symptoms, mental health concerns, and the medicines and non-drug approaches people use to manage them. Researchers will look for differences by time since diagnosis, age, race/ethnicity, sexual identity, income, and where people live. The goal is to identify barriers to supportive care and services that help improve quality of life.
Who could benefit from this research
Good fit: Adults who have been diagnosed with ovarian cancer—at any time since diagnosis and from diverse ages, races/ethnicities, sexual identities, and geographic locations—are the ideal participants.
Not a fit: People without a history of ovarian cancer or whose health concerns are unrelated to ovarian cancer are unlikely to benefit directly from this work.
Why it matters
Potential benefit: If successful, this work could lead to better-tailored supportive care and programs that address the real needs of ovarian cancer survivors.
How similar studies have performed: Previous survivorship research has identified common physical and emotional problems, but combining surveys and interviews across diverse ovarian cancer survivors to map unmet needs is still relatively uncommon.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Vogel, Rachel Isaksson — University of Minnesota
- Study coordinator: Vogel, Rachel Isaksson
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.