Kidney problems after congenital heart surgery in children

Kidney-Associated Diseases after Congenital Heart disease surgery In Children

NIH-funded research Johns Hopkins University · NIH-11262317

This project follows children who had congenital heart surgery to learn how heart defects and surgery relate to high blood pressure and kidney disease.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionJohns Hopkins University NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11262317 on NIH RePORTER

What this research studies

If you join, the team will enroll about 350 children who had their first congenital heart surgery 4–8 years ago at four U.S. children's hospitals. They will focus on children with single-ventricle conditions such as hypoplastic left heart syndrome and other high-risk defects. Participants will come for in-person visits where doctors check blood pressure, measure kidney function, and collect medical history and tests over time. The study aims to map who develops high blood pressure or chronic kidney disease after heart surgery so care can be improved earlier.

Who could benefit from this research

Good fit: Children who had congenital heart surgery about 4–8 years ago, especially those with single-ventricle defects like hypoplastic left heart syndrome, are the intended participants.

Not a fit: Children without congenital heart defects, those who never had cardiac surgery, or people not seen at participating hospitals are unlikely to be eligible or directly benefit.

Why it matters

Potential benefit: If successful, the work could identify children with congenital heart disease who need earlier monitoring or treatment to prevent or slow kidney disease and high blood pressure.

How similar studies have performed: Previous research has shown higher rates of hypertension and kidney disease in people with congenital heart disease, but long-term pediatric cohorts focused on high-risk surgical groups are relatively limited.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.