Kidney Health Initiative: A patient-focused public-private effort to speed kidney disease therapies
Official title: Kidney Health Initiative is a public-private partnership between the American Society of Nephrology, US Food and Drug Administration and the kidney community.
Funded at American Society of Nephrology, INC. · NIH-11403008 · Data updated 2026-11-12
A patient-facing collaboration is working to remove barriers and speed the development of new drugs, devices, and biologics for kidney diseases.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | American Society of Nephrology, INC. NIH-funded |
| Lab location | 1 site (Washington, United States) |
| Project start | September 1, 2014 |
| Project end | August 31, 2029 |
| Funding year | 2026 |
| Award (this year) | $300,000 |
| NIH project number | 5R18FD005283-13 |
| Project ID | NIH-11403008 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates are individuals with kidney disease who are interested in participating in patient advisory roles or benefiting from faster development of new treatments.
✕Less likely to help
If a patient is not seeking involvement in research planning or does not have kidney disease, the direct benefits may be limited.
What this research studies
This program brings together patients, clinicians, industry, and regulators to identify hurdles in kidney research and translate them into practical actions. It aims to create endpoints, roadmaps, and tools that incorporate the patient perspective into clinical research and product development. The initiative convenes stakeholders to develop consensus recommendations that could guide future trials and regulatory decisions. It emphasizes pre-competitive collaboration to benefit people living with kidney diseases.
Why it matters
Potential benefit: If successful, patients with kidney disease could see faster access to safer and more effective therapies.
How similar studies have gone: Similar multi-stakeholder collaborations have shown progress in aligning research with patient needs and regulatory expectations.
Where this research is happening
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American Society of Nephrology, INC.
Washington, United States Active
Researchers
- Principal investigator: Ibrahim, Tod Ramses — American Society of Nephrology, INC.
- Study coordinator: Ibrahim, Tod Ramses
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.