Investigating how mitochondrial dysfunction contributes to brain degeneration in children with TBCK mutations

TBCK Encephaloneuronopathy: establishing the role of mitochondrial dysfunction in promoting neurodegeneration

NIH-funded research Children's Hosp of Philadelphia · NIH-10883728

This study is looking at how problems with tiny parts of cells called mitochondria affect children with TBCK gene mutations, especially those with a serious condition that impacts their brain and nervous system, and it aims to find ways to improve their health and well-being.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionChildren's Hosp of Philadelphia NIH-funded
Lab location1 site (Philadelphia, United States)
Project IDNIH-10883728 on NIH RePORTER

What this research studies

This research focuses on understanding the role of mitochondrial dysfunction in children with TBCK gene mutations, particularly those with a severe form known as TBCK-encephaloneuronopathy. The study examines how these mutations lead to neurodegeneration and other neurological issues, including intellectual disabilities and autism. By analyzing patient-derived fibroblasts, the research aims to uncover the biological mechanisms behind these conditions and explore potential therapeutic interventions that could enhance mitochondrial function. The approach includes activating specific signaling pathways to assess their impact on cellular health and function.

Who could benefit from this research

Good fit: Ideal candidates for this research are children diagnosed with TBCK mutations, particularly those exhibiting severe neurological symptoms.

Not a fit: Patients without TBCK mutations or those with unrelated neurological conditions may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new treatments that improve neurological outcomes for children affected by TBCK mutations.

How similar studies have performed: Previous studies have shown promising results in understanding mitochondrial dysfunction in related conditions, suggesting potential for success in this novel approach.

Where this research is happening

Philadelphia, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Aran-Duchenne disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.