Investigating how genetic changes affect ALS and frontotemporal dementia.

Epigenetic Mechanisms Contributing to the Pathogenesis of ALS/FTD with GGGGCC Repeat Expansion Mutation at the C9orf72 Locus

NIH-funded research Columbia University Health Sciences · NIH-10873284

This study is looking at how changes in a specific part of our DNA might affect the development of ALS and frontotemporal dementia in people with a certain genetic mutation, to help understand why some people get these diseases while others don’t.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionColumbia University Health Sciences NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-10873284 on NIH RePORTER

What this research studies

This research focuses on understanding the role of epigenetic mechanisms, particularly DNA methylation, in the development of amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD) associated with a specific genetic mutation. Researchers will explore how changes in DNA methylation at the C9orf72 locus influence the onset and progression of these diseases. By utilizing advanced techniques like CRISPR, they aim to manipulate DNA methylation patterns to uncover their effects on cellular function and disease outcomes. This could lead to insights into why some individuals with the mutation develop symptoms while others do not.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals with the GGGGCC repeat expansion mutation at the C9orf72 locus who are at risk for ALS or FTD.

Not a fit: Patients without the C9orf72 mutation or those with other forms of ALS or FTD may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new therapeutic strategies that modify disease progression in ALS and FTD patients.

How similar studies have performed: Previous research has indicated that epigenetic factors play a significant role in ALS and FTD, suggesting that this approach could yield valuable insights.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Amyotrophic Lateral Sclerosis Motor Neuron Disease
Last reviewed 2026-06-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.