Investigating how fragile X premutation affects children's cognitive and behavioral skills

Association of the Fragile X Premutation with Cognitive and Behavioral Skills in Children

NIH-funded research Queens College · NIH-10909898

This study is looking at how a specific genetic change related to fragile X syndrome affects the thinking and behavior of children who have it, to see if they face more challenges than kids without this change.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionQueens College NIH-funded
Lab location1 site (Flushing, United States)
Project IDNIH-10909898 on NIH RePORTER

What this research studies

This research aims to understand the impact of the fragile X premutation on the cognitive and behavioral development of children. It focuses on children who inherit a specific genetic variant associated with fragile X syndrome, which may lead to developmental delays, attention deficits, and anxiety. The study will rigorously assess these children to determine if the premutation poses significant risks to their development compared to non-carriers. By analyzing various cognitive and behavioral skills, the research seeks to fill a critical gap in knowledge regarding the early effects of this genetic condition.

Who could benefit from this research

Good fit: Ideal candidates for this research are children aged 0-21 who have inherited the fragile X premutation from their mothers.

Not a fit: Patients who do not carry the fragile X premutation or are outside the age range of 0-21 may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved understanding and early interventions for children affected by the fragile X premutation.

How similar studies have performed: Previous research has indicated potential developmental risks associated with the fragile X premutation, but this study aims to provide more comprehensive and rigorous evidence.

Where this research is happening

Flushing, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.