Investigating health outcomes in retinoblastoma survivors
Research Into Visual Endpoints and RB Health Outcomes After Treatment: The RIVERBOAT Consortium
This study is bringing together retinoblastoma survivors from around the world to learn more about their health and how genetics affect the disease, with the goal of finding better ways to treat it and help kids keep their vision and stay healthy in the long run.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Vanderbilt University Medical Center NIH-funded |
| Lab location | 1 site (Nashville, United States) |
| Project ID | NIH-10669063 on NIH RePORTER |
What this research studies
This research aims to create a large international consortium of retinoblastoma survivors to study their health outcomes and understand how genetic factors influence the disease's presentation. The project focuses on the effectiveness of various treatment methods, including chemotherapy and intra-arterial chemotherapy, in preserving vision and minimizing long-term health issues. By analyzing data from diverse populations, the research seeks to improve treatment strategies and patient care for children affected by retinoblastoma.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and young adults who have been diagnosed with retinoblastoma and have undergone treatment.
Not a fit: Patients who have not been diagnosed with retinoblastoma or who are outside the age range of 0-21 years may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment protocols that enhance the quality of life for retinoblastoma survivors.
How similar studies have performed: Previous research has shown promising results in improving outcomes for retinoblastoma survivors through innovative treatment approaches, indicating that this consortium's efforts could build on established successes.
Where this research is happening
Nashville, United States
- Vanderbilt University Medical Center — Nashville, United States (Active)
Researchers
- Principal investigator: Friedman, Debra L. — Vanderbilt University Medical Center
- Study coordinator: Friedman, Debra L.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.