Investigating genetic factors in neonatal seizures and their link to epilepsy

NSR-GENE (Neonatal Seizure Registry, GEnetics of post-Neonatal Epilepsy)

NIH-funded research University of California, San Francisco · NIH-11016944

This study is looking at how genes might affect the chances of kids getting epilepsy after having seizures as newborns due to brain injury, and it aims to help doctors better predict which children might be at risk by using simple genetic tests along with other health checks.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of California, San Francisco NIH-funded
Lab location1 site (San Francisco, United States)
Project IDNIH-11016944 on NIH RePORTER

What this research studies

This research focuses on understanding how genetic factors influence the risk of developing epilepsy in children who have experienced neonatal seizures due to brain injury. By utilizing a large cohort of children with acute symptomatic neonatal seizures, the study will conduct non-invasive genetic testing alongside clinical assessments, EEG, and MRI data. The goal is to identify specific genetic variants and pathways that may contribute to the development of epilepsy, thereby enhancing predictive models for at-risk children.

Who could benefit from this research

Good fit: Ideal candidates for participation are children who have experienced acute symptomatic neonatal seizures and their families.

Not a fit: Patients who have not experienced neonatal seizures or those with other unrelated neurological conditions may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved risk assessment and targeted interventions for children at high risk of developing epilepsy after neonatal seizures.

How similar studies have performed: Previous research has shown promise in identifying genetic factors related to epilepsy, suggesting that this approach could yield valuable insights.

Where this research is happening

San Francisco, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Acquired brain injury
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.