Investigating brain injury in young children with sickle cell disease

Neuroimaging and Neurocognitive Markers of Brain Injury in Young Children with Sickle Cell Disease

NIH-funded research Hugo W. Moser Res Inst Kennedy Krieger · NIH-11075862

This study is looking at how sickle cell disease can affect the brains of young children aged 2 to 5, using special imaging techniques that don’t require sedation, to help find hidden brain injuries and create a tool to spot kids who might need extra care in the future.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionHugo W. Moser Res Inst Kennedy Krieger NIH-funded
Lab location1 site (Baltimore, United States)
Project IDNIH-11075862 on NIH RePORTER

What this research studies

This research focuses on understanding the neurological complications associated with sickle cell disease (SCD) in young children aged 2 to 5 years. It aims to identify silent cerebral infarctions (SCI) using advanced neuroimaging techniques without the need for sedation, which is often a barrier for this age group. The study will involve a combination of neuroimaging, neurocognitive testing, and blood analysis to assess brain injury markers. By following a group of 100 children with SCD over several years, the research seeks to develop a diagnostic tool that can help identify those at risk for further neurological issues.

Who could benefit from this research

Good fit: Ideal candidates for this research are young children aged 2 to 5 years diagnosed with sickle cell disease.

Not a fit: Patients outside the age range of 2 to 5 years or those without a diagnosis of sickle cell disease may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to earlier diagnosis and intervention for young children with sickle cell disease, potentially improving their cognitive outcomes and overall quality of life.

How similar studies have performed: Previous studies have successfully used neuroimaging techniques in older populations with sickle cell disease, but this approach in very young children is relatively novel.

Where this research is happening

Baltimore, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Acquired brain injury
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.