Investigating a gene's role in a rare brain disorder affecting neuron migration

Study of Nedd4L in Periventricular Nodular Heterotopia

NIH-funded research University of Illinois at Urbana-Champaign · NIH-10883914

This study is looking at how changes in a specific gene might affect brain development in people with periventricular nodular heterotopia (PNH), a condition that can cause seizures and learning challenges, to help us better understand what causes these issues.

Quick facts

Grant typeR03 grant
Study typeNIH-funded research
Funding institutionUniversity of Illinois at Urbana-Champaign NIH-funded
Lab location1 site (Champaign, United States)
Project IDNIH-10883914 on NIH RePORTER

What this research studies

This research focuses on periventricular nodular heterotopia (PNH), a neurological disorder that arises from improper neuron migration during brain development. The study aims to understand the role of the Nedd4L gene, which has been linked to PNH through mutations. Researchers will explore how these mutations affect the phosphorylation of cofilin, a protein involved in the structure of neurons, and how this impacts neuronal migration. By identifying the mechanisms involved, the research seeks to provide insights into the underlying causes of PNH and its associated symptoms, such as seizures and learning disorders.

Who could benefit from this research

Good fit: Ideal candidates for this research are adolescents aged 12-20 who have been diagnosed with periventricular nodular heterotopia.

Not a fit: Patients who do not have periventricular nodular heterotopia or related neurological disorders may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to better understanding and potential treatments for individuals with PNH, particularly those experiencing seizures and learning difficulties.

How similar studies have performed: While research on PNH is limited, previous studies have shown promising results in understanding related genetic mechanisms, suggesting potential for success in this area.

Where this research is happening

Champaign, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.