Increasing genetic counseling for families at risk of Lynch syndrome
Development and Initial Testing of a Behavioral Intervention to Increase Pre-Test Genetic Counseling Among Families at Risk of Lynch Syndrome
This study is all about helping families who might be at risk for Lynch syndrome get the genetic counseling they need, by figuring out what stops them from seeking help and creating helpful resources to encourage them to get tested for cancer sooner.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project ID | NIH-11138785 on NIH RePORTER |
What this research studies
This research focuses on improving the uptake of pre-test genetic counseling for families at risk of Lynch syndrome, a hereditary condition that increases cancer risk. The project aims to identify the barriers and facilitators that prevent individuals from seeking genetic counseling. By developing a behavioral intervention based on these findings, the research seeks to motivate more families to participate in genetic testing, which can lead to earlier cancer detection and prevention. The approach includes gathering insights from families and creating tailored resources to support their decision-making process.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals who have family members diagnosed with Lynch syndrome and are at risk but have not undergone genetic counseling themselves.
Not a fit: Patients who do not have a family history of Lynch syndrome or those who have already undergone genetic counseling may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to increased awareness and participation in genetic counseling, ultimately reducing cancer risks for families affected by Lynch syndrome.
How similar studies have performed: Previous research has shown that behavioral interventions can effectively increase participation in genetic counseling, suggesting that this approach may yield positive results.
Where this research is happening
Birmingham, United States
- University of Alabama at Birmingham — Birmingham, United States (Active)
Researchers
- Principal investigator: Yan, Haoyang — University of Alabama at Birmingham
- Study coordinator: Yan, Haoyang
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.