Inclusive Alzheimer’s research registries for people in underserved neighborhoods
Recruiting and retaining participants from disadvantaged neighborhoods in registries
This project tries different ways to sign up and keep people from disadvantaged neighborhoods in Alzheimer’s research registries so more diverse volunteers can join future studies.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California-Irvine NIH-funded |
| Lab location | 1 site (Irvine, United States) |
| Project ID | NIH-11285482 on NIH RePORTER |
What this research studies
I would be asked to help build and improve Alzheimer’s research registries that reach people in underserved neighborhoods. The team will compare traditional recruitment (clinic referrals and ads) with modern and community-centered approaches (community outreach, targeted advertising, and mobile or remote enrollment) and measure who stays enrolled over time. They will compare registry participants to other research populations to estimate and correct bias from convenience sampling. The project combines outreach, data analysis, and community feedback to create practical methods for more inclusive registry recruitment.
Who could benefit from this research
Good fit: Ideal candidates are older adults, people at risk for Alzheimer’s disease or their caregivers—especially those living in underserved or disadvantaged neighborhoods who are willing to join a research contact registry.
Not a fit: Younger people without Alzheimer’s risk factors or individuals who live far outside the investigators' recruitment area may not benefit directly from this registry-focused work.
Why it matters
Potential benefit: If successful, this could make Alzheimer’s research more representative so study results and future treatments better reflect people from disadvantaged neighborhoods.
How similar studies have performed: There is limited prior evidence comparing recruitment approaches specifically for underserved neighborhoods in Alzheimer’s registries, so much of this work is relatively novel.
Where this research is happening
Irvine, United States
- University of California-Irvine — Irvine, United States (Active)
Researchers
- Principal investigator: Grill, Joshua — University of California-Irvine
- Study coordinator: Grill, Joshua
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.