Improving urinary incontinence management for adults with spina bifida
A patient-centered approach to urinary incontinence in adults with spina bifida
This study is creating a friendly app called MyGoal-A to help adults with spina bifida manage urinary incontinence by letting them track how it impacts their daily lives and set personal treatment goals that fit their unique situations.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Indiana University Indianapolis NIH-funded |
| Lab location | 1 site (Indianapolis, United States) |
| Project ID | NIH-10742128 on NIH RePORTER |
What this research studies
This research focuses on developing a patient-centered app called MyGoal-A to assist adults with spina bifida in managing urinary incontinence. The app will help users evaluate how urinary incontinence affects their lives and set personalized treatment goals that consider their unique circumstances, such as work and relationships. By integrating various aspects of their lives, the app aims to empower individuals to make informed decisions about their treatment options. The approach builds on previous work with children, adapting it for adult needs without parental involvement.
Who could benefit from this research
Good fit: Ideal candidates for this research are adults aged 21 and older who have spina bifida and experience urinary incontinence.
Not a fit: Patients who do not have spina bifida or those under 21 years old may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could provide adults with spina bifida a tailored tool to better manage urinary incontinence and improve their quality of life.
How similar studies have performed: Previous research has shown success in developing similar patient-centered tools for children, indicating potential for success in this adult-focused approach.
Where this research is happening
Indianapolis, United States
- Indiana University Indianapolis — Indianapolis, United States (Active)
Researchers
- Principal investigator: Szymanski, Konrad — Indiana University Indianapolis
- Study coordinator: Szymanski, Konrad
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.